Monday, June 20, 2011

Eye to Eye...

this weekend I was at the birthday party of a friend (TAB - in the disabled world means temporarily able-bodied... the temporary is a new phrasing...)... I was the only wheeler there, but have known some of the folks for quite a while.... so it's not quite so awkward.... actually we left my wheelchair in the car ( I can walk short distances with a cane and occasional assistance) because I found it tends to repel people... more w/c = less interaction.... I can't explain it, but I've learned it....

I exchanged some happy greetings with those I knew, including the birthday woman, and had some conversation while seated in your standard backyard chair (with stealth I search out the arm chairs as they help with balance).... people sat next to me, many were artists as well and we talked the usual artist talk and it was fun...

There were guests along the food table talking, some I wanted to say 'hi' to but the challenge was that with my disability it's very difficult for me to stand for a length of time (within 10 minutes my legs will give out)... so unless it's a particulary strong day, I rarely try ... the clumsiness of having to say "Excuse me but I need to sit down" while someone is deep in conversation about their latest relationship/painting/ sculpture or... derails the energy of the contact....

Sometimes I sit quietly, when people do stop to say hi... they are standing and I'm not... and their goes that wonderful energy of mutuality.... and people, in general, are programmed not even to see a child height adult...

it's challenging and well-known among those with disabilities who deal with it.... just imagine talking to the store manager over a problem when he's 2-3 feet taller than you are.... it can be tough to make a point...

A few years ago I attended a focus group on a fancy w/c that could do some amazing tricks.... but every person in the group fixated on this chair's ability to rise in the air to normal height....
you could actually roll down the street at 5-6 feet tall... we were swooning....
the product we reviewed was never marketed, but the vendor broke confidentiality so taken by our swooning and today you can buy for about $20,000 a wheelchair that makes you the size of an adult... wow... now that might make things a bit different....

Wednesday, June 8, 2011

so how have you been, my imaginary audience?? ...
there are no excuses, or an audience from what I can see... but apologies to myself for walking away from this blog.... it has value, read or not...

I didn't walk away from the concept..... probably my major personal goal of the last 2 plus years has been to tackle this dilemma, life problem, whatever... and I have not tackled it or at least not resolved it....

although part of the consequences of writing the blog was my own realization that I did not accept myself as I am.... in part, a disabled person.... not the (as I now know it's often called, damn the titles)....temporarily able bodied person I started life as....

so you think you have a problem and it's right there in the mirror.... waiting for you to see it...

tweaking and fretting, digging and talking, venting and tearing, I have faced this demon ... this unsummoned change in my position in the world.... and found some self-esteem .... resettling the molecules of my being to new positions on myself and others....

sure wish I had chronicled details....

today I am a whole woman, yet disabled, facing a world that rarely accepts what it perceives as different.... standing with thousands of other disabled people who also are isolated, lonely and often desperately reaching out to connect....

let's talk more about that...